PE01723: Essential tremor treatment in Scotland

Health

Petitioner: Mary Ramsay

Status:
Lodged

Date Lodged: 04 July 2019

Calling on the Scottish Parliament to urge the Scottish Government to raise awareness of essential tremor and to support the introduction and use of a focus ultrasound scanner for treating people in Scotland who have this condition.

 

Petition History:

  • SPICe Briefing (145KB pdf) 

Summary

5 September 2019: The Committee agreed to write to the Scottish Government. It also agreed to write to Dr Gilbertson, University of Dundee and delegate authority to the clerks to write to other relevant stakeholders. Link to Official Report of Meeting 5 September 2019

16 January 2020:The Committee agreed to write to the Scottish Government and NHS Tayside. Link to Official Report of Meeting 16 January 2020

10 September 2020: The Committee agreed to invite Professor Nandi to give evidence at a future Committee meeting. The Committee also agreed to write to the Scottish Government and the National Institute for Health and Care Excellence. Official Report of Meeting 10 September 2020

16 December 2020: The Committee agreed to write to the Cabinet Secretary for Health and Sport. The Committee also agreed to write to NHS Tayside. Link to Official Report of Meeting 16 December 2020

10 March 2021: The Committee agreed to continue this petition and include it in its legacy paper for its successor Committee, along with a suggestion to seek an update from the Cabinet Secretary for Health and Sport on the Scottish Government’s plans to make an application to the National Specialist Services Committee for a MRgFUS service. Link to Official Report of Meeting 10 March 2021 

Written submissions

PE1723/A: Sue Ryder submission of 1 October 2019 (63KB pdf)

PE1723/B: National Tremor Foundation of 17 October 2019 (76KB pdf)

PE1723/C: Scottish Government submission of 3 December 2019 (93KB pdf)

PE1723/D: University of Dundee submission of 14 October 2019 (91KB pdf)

PE1723/E: Petitioner submission of 8 January 2020 (89KB pdf)

PE1723/F: Scottish Government submission of 25 February 2020 (97KB pdf)

Do you agree it is important to raise awareness of essential tremor?

How do you think this can be achieved?

Would you like access to a focus ultrasound scanner in Scotland?

What benefits to the individual and the NHS do you think a focus ultrasound scanner could deliver?

I agree that it is important to raise awareness of Essential Tremor it affects thousands of people. Impacts on their daily lives and in severe cases prevents them from working. Awareness could be achieved through the media, TV , Radio, Newspapers and magazine articles. Also National Tremor Foundation pop up stalls at public events. It would be greatly beneficial to Scottish ET sufferers to have a focused ultrasound scanner available in Scotland.I feel it would be a way forward in delivering good treatment for Scottish sufferers. It would benefit the patient and NHS, the patient would not be required to travel to London,( the only focused ultrasound scanner to the best of my knowledge in the UK) traumatic in itself, they would also remain under the care of the Scottish medics responsible for delivering their treatment. The Scots medics would not be reliant on a report, they would have total control of the treatment delivered to their patient.

Judith Eastham

11:24 on 29 Jun 2019

pleasure to sign

margaret dundas

10:54 on 27 Jun 2019

I too have Essential Tremor for over 45yrs and understand the daily difficulties and a need for this disorder to be taken more seriously with FUS as a treatment. I raise awareness of this neurological disorder and also Support group coordinator for National Tremor Foundation

Jackie Farrell

10:58 on 26 Jun 2019

Please make this available so people can have a better quality of life.

Donald MacDonald

19:42 on 25 Jun 2019

Promoting a worthwhile cause

Ronald Caie

19:00 on 25 Jun 2019

I've had an essential tremor for more than 10 years and it has a massive impact on my life at work and at home. Anything that can help I'm all in favour off.

Keith Davidson

18:24 on 25 Jun 2019

Myself and family memebrs live with this condition. I am on long term medication which helps but other family members cannot take the medication and their tremor is so bad that it is very difficult to even take a drink from a cup. They could benefit from treatment if this machine was purchased and hopefully it would enable them to carry out all activities of daily living, independently.

Trish Chappell

12:21 on 25 Jun 2019

If the NHS, save 30k because an invasive operation is surplus to requirements, surely £10k as an investment for everyone.

William Martyn

7:42 on 25 Jun 2019

This needs to be granted it's a no brainer

William Ryan

0:15 on 25 Jun 2019

I work for NHS Scotland and have a colleague what has severe tremors and would benefit as well as many others for this in Scotland.

Mrs Melanie mcginnes

22:10 on 24 Jun 2019

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